It took me years to find it,
but specialists and effective treatment for tailbone pain exists!
Our guest in this episode is Sabine
Sabine was a 33 year old midwive when her tailbone pain started with a car accident. It led to a lot of pain, not being able to work anymore and a very restricted daily and social life. Now, 17 years later, she shares her story about how tailbone pain affected her life, but also her path in the medical and therapeutic world in finding the right help and specialised healthcare professionals.
She saw a variety of doctors and therapists, underwent treatments and injections and mainly shares a message of hope and recovery. In this episode she will tell her story, which I will guide by explanations about the things that occurred. It became a pleasant, informative and touching conversation which I love to share with you.
In this episode you will learn about the patient perspective of tailbone pain. This expert from experience gives a valuable insight where not only other patients, but also doctors and therapists can learn from. We go into what help and information is given and how she eventually found a solution that helped her.
You can find my podcast in the menu under Podcast as well as the links to the platforms where it is posted.
Bonus
In the episode Sabine shares how she found specialised treatments gave her hope again in healing and how that led her to create a vision board drawing about her desires and goals in the process towards recovery. She gave consent to share it with the listeners and you can see it here. it gives a good insight how things that people without tailbone pain do on a regular basis and take for granted, often are dreams for people that suffer from it…
Get in touch
In you have any questions about anything in and outside of this episode, comments or requests, let me know! You can email me through the contact field below or directly at roel@roelwilbers.nl.
Jon Miles – Researcher and patient
You are not alone as a patient
and there are solutions out there
Our guest in this episode is Jon Miles
Jon is from the UK and a researcher on the topic of tailbone pain. He is worldwide a very well known person in the tailbone world, knows a lot about the literature and also unfortunately understands how it is to suffer from coccyx pain because he did so himself for many years. He underwent almost all the therapies out there and finally had it surgically removed in 1999.
We are going to learn about his personal story as a patient, but also about his interest in the topic which led to the website coccyx.org, the probably biggest online platform for tailbone pain worldwide that had up to 150.000 unique visitors a month. On this he shares a lot of information, also by specialists, links to scientific research, patient reviews and how to find specialists that treat tailbone pain worldwide.
Next to that we will cover the research he has done himself and presented at the first and second edition of the International Symposium on Coccyx Pain.
You can find the podcast in the menu under Podcast as well as the links to the platforms where it is posted.
Resources
As mentioned in the episode, Jon’s website www.coccyx.org has hundreds of pages about tailbone problems and thousands of patient reviews about the different sorts of treatments. Visit it for more info and as well to find a specialist near you.
It also has Jon’s personal story and his presentations that he held at the first and second International Symposium on Coccyx Pain. You can find those by clicking here.
Get in touch
In you have any questions about anything in and outside of this episode, comments or requests, let me know! You can email me through the contact field below or directly at roel@roelwilbers.nl.
Dorien van Mulligen – Pelvic physiotherapist
The pelvic floor and the tailbone influence each other strongly
and in chronic pain both need evaluation
Our guest in this episode is Dorien van Mulligen
Dorien is a physiotherapist, a Cesar exercise therapist and has a masters degree in pelvic physiotherapy. Her working days are fully focused on patients with pelvic girdle pain and pelvic floor muscle complaints such as urination, defecation, sexual problems. More than half these have tailbone pain.
Next to her work in the clinic, she also is a teacher at the course where physiotherapists learn how to treat tailbone problems. She is a true expert on the subject and will take us along in het knowledge and experience about it.
In this episode we will dive into the problems that arise from tailbone pain, the treatment of it and the importance of the pelvic floor.
You can find the podcast in the menu under Podcast as well as the links to the platforms where it is posted.
Resources
Dorien talked about the importance of the pelvic floor and breathing and other exercises to mainly relax these muscles.
The specific advice she gave for people with tailbone pain was:
- Relax your pelvic floor by breathing to your belly and pelvis (she explains the exercise at 1h03m in the episode)
- If you are in pain, prevent sitting
- Never push yourself when you are in pain by geting yourself in too much strain in daily life but also when doing exercises
If you are looking for more specific exercises to relax the pelvic floor and some audio’s that guide you through the process, you can find them on my website by clicking here.
Therapy by Dorien
Dorien works at the ProFundum Instituut in Dordrecht. If you are interested in treatment by Dorien, you can find the institute here.
Get in touch
In you have any questions about anything in and outside of this episode, comments or requests, let me know! You can email me through the contact field below or directly at roel@roelwilbers.nl.
Cecile Röst – Physiotherapist
It started with one technique,
but since then there has been a lot
and ongoing development in tailbone therapy
Our guest in this episode is Cecile Röst
Cecile is a physiotherapist, manual (musculoskeletal) therapist, and clinical epidemiologist, specialised in pelvis and tailbone pain. She founded a physiotherapy clinic where she still treats patients herself, and half the patients she sees come for tailbone pain.
She also runs a training institute for physiotherapists focused mainly on pregnancy-related pelvic girdle pain and tailbone problems, under the name Rost Therapy. Here she also teaches several courses for physiotherapists on treating tailbone pain from externally. This is for a big part based on the work of Meine Veldman who developped this technique and with whom she collaborated a lot and participated in research about the effectiveness of this method.
In this episode we will go deeper into how treatment for tailbone pain through manual mobilisations works, what the outcomes are, how there is an ongoing development in tailbone therapy and how she added to that evolution.
You can find the podcast in the menu under Podcast as well as the links to the platforms where it is posted.
Resources
Cecile was so kind to record a video especially for this podcast episode and after the short introduction, you will have a visual of how to sit down and stand up, how to widen and relax your your tailbone area. And of course she demonstrates her Peacock exercise.
More about Cecile
Do you want to know more about Cecile? You can find her at: bekkentherapie.nl
Get in touch
In you have any questions about anything in and outside of this episode, comments or requests, let me know! You can email me through the contact field below or directly at roel@roelwilbers.nl.
The world of tailbone pain
Tailbone pain can be effectively treated
although only a small percentage of healthcare providers,
within all the professions that see these patients,
are aware of that
Welcome to this podcast and the tailbone therapist
In this first episode you will all about this podcast, why it started and what it will bring you. It is also an introduction into the world of tailbone problems. Some myths and often heard ideas about this will be debunked and you will already get some practical info and tips.
In this episode we will go deeper into how treatment for tailbone pain through manual mobilisations works, what the outcomes are, how there is an ongoing development in tailbone therapy and how she added to that evolution.
You can find my podcast in the menu under Podcast as well as the links to the platforms where it is posted.
More about tailbone pain
For more info about tailbone pain and the treatment options, you will find here on my website. There will be a lot of info but also tips and exercises that can directly relieve your pain.
Get in touch
In you have any questions about anything in and outside of this episode, comments or requests, let me know! You can email me through the contact field below or directly at roel@roelwilbers.nl.